Saturday, August 8, 2009
Thursday, June 4, 2009
It's Time to Make the Donuts
Anyway, the point is that I am doing the same thing every day. Here is a bit of how the schedule breaks out. Don't worry, there are pictures coming up.
4:00 AM: One or more of the babies wakes up and demands to be fed. This is our new alarm clock. It most often has me awaking to laughter because I find the babies' cries funny sometimes. As I often tell Marcy: "It is such an impotent rage, isn't it?"
4:10 AM: After we blindly stumble through a house that has become a veritable minefield of discarded spit rags, chew toys and forgotten binkies, we arrive in the nursery and have to change the morning diaper. What bothers me is how devious their little smiles are as it happens:
6:30 AM: On the weekends, we often try and get a bit more sleep until they wake up again or the older kids wake up, then it is time to clean up and get ready for the next bottle.
8:00 AM: After the regular morning bottle, the twins like to veg for a bit in their swings. They don't often wake up lively and want to play. They are slow risers. Here is Tony, stretching as we wakes up. He loves to smile and giggle at passersby:
12:00 PM: Time for another bottle and then it is nap time. Now by nap time, we mean that they have to lay in their cribs. Sleep is negotiable.
2:00 PM: Nap time is officially over when we can no longer stand the screaming. Time for diaper changes and perhaps a little practice sitting up while Mommy holds our hands, like this fine example from "Thing 2", Tony:
Or perhaps they spend some time sitting in their "Bumbo" seats, these really neat plastic seats that they have now to teach the babies to sit up on their own. Here is Xander with his canary yellow version with an assist from big brother, David:
3:30 PM: Another recent afternoon distraction has been bouncer seats. They are now old enough to at least hang lifelessly from them like chubby, fleshy marionettes. Here is an example of the fun. First up is Tony:
Xander is still a little small for the big torture device, so he gets the lower to the ground scooter style. we have to put a pillow under his feet to reach the ground but he loves bouncing around in that thing:
6:30 PM: David and Beth have been so great about helping out in the afternoons and evening when the boys start really getting fussy. Little brothers just love their big brothers....until they get older at least.
7:30 PM: Dinner is now solid as we are learning to enjoy things like peaches and green beans. Once this over, it is bed time.
8:30 PM: The night is time to do fun stuff with the older kids or just hanging out and trying to decompress. The older two have had a lot going on lately. David, for example, recently starred in his school's production of The Wizard of Oz. He played the Cowardly Lion and he was excellent and funny and really stole the show.
10:00 PM: We collapse in bed and try to get a little sleep before the whole thing starts all over again.
4:00 AM: The screaming alarm goes off again....time to make the donuts!
Author's Note: I am having the most fun of my life. I never knew how much we needed these twin boys until God threw them into our lap.
Another Author's Note: Thanks so much to Maw Maw for all of the pictures above. Our digital camera was dropped...er...broke and so these are the best and most recent pictures we have and may be the last for a little while until we can procure a new camera.
One Last Author's Note: Thanks for dropping by, and sorry we all have been out of touch. It's been a busy six months :-)
Friday, April 3, 2009
Twin Updates
Saturday, February 7, 2009
Hello World
Tuesday, January 20, 2009
Tony Randall and Jack Klugman Eat your Heart Out
I hate to get all Neil Simon on your behind, but that is all I can think of when I see my two boys. The big news is that Alexander has grown out of his Boy in the Plastic Bubble phase and is ready to cohabit with his brother. Thusly:
The babies are still in the NICU. They are still on feeding tubes, but we are able to do more with them now. By that, I mean, they are allowing us to change dirty diapers. You see, it is apparently a privilege to get a diaper full of butt-pudding. They are so proud of this, they often load up the babies with suppository laxatives when they know I am planning on paying a visit.
Marcy has also been able to hold them at the same time, which just seems like an accident waiting to happen. I'll just show you the picture and let you decide on how you'll explain it to the nice pit bull at Child Protective Services.Friday, January 16, 2009
If This Vans a Rockin'....
We have driven that car virtually into the pavement over the past seven some-odd years. Lately, it has shown signs that it was ready, like an aging Stallion, to be led into a field and put out of its misery and perhaps ground into a food source for other farm animals.
I have not gone to a car dealership and tried to secure financing for a new minivan (which is what we need to transport our expanded family) for several reasons:
- I knew that minivans were much more expensive than we could afford.
- I felt that with a the flagging economy, financing would be harder to secure.
- I had a sneaking suspicion that when I told the car sales guy that I had no down payment and could only afford a certain low amount per month, he or she would laugh so hard, they might hurt themselves and I could did not want a busted gut injury on my conscience.
I decided on Monday that it was time to seek out options. I had heard of leasing before and according to the radio spots, it could cost half the monthly payments of buying. So, I popped over the website for D&M Auto Leasing and got hooked up with a man named Jay. I emailed a list of my laughably unrealistic requirements and my even more laughable trade-in. After a couple of emails and a couple of phone conversations, Jay found me a minivan to purchase. Even more incredible, he found me financing to fit my needs. Today, he drove over our new van right to our door, we signed all of the paperwork he needed and he drove off in the Town Car, presumable to find a big enough gun to shoot it with.
Here it is, the new van:
I was even able to coax Marcy out into camera range to try it on for size:Praise the Lord for helping us find a vehicle that fit our needs. As always, He has provided just as we needed it.
It was the easiest car buying experience of my life.
Monday, January 12, 2009
Baby Steps
- Babies are single minded developers. Their little bodies are so small and the available energy needed for development is so rare that their bodies will only use the energy to develop a single system at a time. If they are having heart trouble, for example, their bodies will work on that system before moving on to “less essential” systems like stomach and bowels.
- 40 weeks isn’t just a random number. The complex systems put in place by God truly are miraculous and they take time to develop. Babies really do need every second of those 40 weeks to get ready to exist in the outside world. Our babies were born at 32 weeks meaning that there are sill 8 weeks of development that need to occur in their bodies and minds before they are truly ready to begin the process of growth and development as babies.
- Weight doesn’t matter. You might think that the babies small size and weight are a factor but they really aren’t important in and of themselves. An underweight baby can still go home with Mommy and Daddy as long as they reach certain developmental goals.
- Time is the hardest thing to give. As parents, your instincts tell you that babies need human contact and nurturing. This is true of a fully developed baby. Fully developed babies like to be rocked and cuddled and sang to. Preemie babies don’t have those same needs. What they need most is sleep. That means that right now the best thing for us to do is not be with the babies most of the time and that separation can be hard.
In the NICU, there is the critical area where the babies are watched over by a nurse at all times. When the babies become a little more stable, they are moved to another area in the NICU called Baby Steps. In this area, one nurse might look after four or five babies at a time. Thursday, we received word that the boys had been moved to Baby Steps. This is certainly progress.
When Can They Come Home?
This is the number one question that I get asked and the one I simply do not have an answer to. What I can tell you is the plan for the boys. As soon as they meet these goals we will have a better understanding of when they will be coming home.
Body Temperature: Alexander still does not have enough body fat and muscle to keep him warm. His body temperature is still too low. He is currently sleeping in what they call an “isolet” which is this plastic aquarium like structure that is heated to keep his body temperature up. Until he can maintain his own body temperature, he cannot come home.
Food: This is the biggest struggle right now. Before they teach the babies how to drink milk from a bottle, they have to make sure that the babies’ stomachs can digest the milk and that their renal and digestive systems are all in working order. To do this, they are administering food through a tube that runs directly into the stomach. Once some food is given, they reverse the process and find out how much of the milk they put in is still sitting there. This tells them how well the babies are handling the feeds.
Neither one of the boys seems to be progressing well down this path. They are both on what is called "continuous feeds", which is where the milk is delivered in a constant drip into the stomach over a continuous period of time (like four hours at a time). This is not ideal, but it provides the food necessary to the body while allowing the system to digest a little at a time as it finishes developing.
Anthony had a setback this past weekend. His stomach slowed down on digesting his milk and it starting coming back up his esophagus (they call it “reflux”). This caused his throat to instinctively close off to keep him from aspirating the milk and he would just quit breathing for stretches of time. This causes his oxygen levels and heart rate to drop off suddenly (to the alarm of his Mother). For this reason, he is back on oxygen until they can get the feed levels right.
The goal, obviously, is for the babies to be able to take a large amount of milk at one time and be able to process it completely before the next feeding. Once the babies can do this, they will start “nippling” which means they will feed them through a tube while giving them a nipple to suck on. This will teach them the connection between a nipple and a full belly. Once they are nippling well, then comes the time when they will be drinking from a bottle only. Once they are able to drink at least eight ounces of milk a day from a bottle and keep it down, they will be just about ready to come home.
Wait and Pray
So, that is where we are. We go and see the babies every day. There are a few hours a day that the babies have “touch time”. This is the time, in between stretches of well needed sleep, that the babies can be picked up, held, have their diapers changed, etc. We visit during these touch times and do as much as we can to feel like part of the process.
The truth is that there is nothing we can do at this point but pray and wait patiently as their little bodies develop one little baby step at time.